The Marathon of Hope Cancer Centres Network (MOHCCN) is a project to curate and share clinical and genomic data on Canadian cancer patients. The project has developed a clinical data model that is largely based on the ICGC-ARGO Data Dictionary.
The most recent version of the data model, as well as supplementary material can always be found in the Clinical Data Model section of the MOHCCN Policies and Guidelines page. Here are direct download links to the various v3.0 documents:
- Clinical Data Model v3.0 (spreadsheet)
- Clinical Data Model v3.0 guidelines - not posted yet; coming soon.
- Clinical Data Model v3.0 release notes (pdf)
- Clinical Data Model v3.0 ER diagram (pdf)
If you have questions about collecting data against the model, or implementing databases or tooling using the model, please create an issue in the issue tracker. If you have a requests for changes or a general model inquiry, please fill out the form on the MOHCCN Policies and Guidelines page.
CanDIG's implementation of the data model can be found in the katsu repository (our clinical data service using Django and PostgreSQL) and the clinical_ETL_code repository (a python library for mapping raw data to the model and generating json files for CanDIG ingest). Most of the data model validation happens in ETL, not katsu.